fmsday2015Today is Fibromyalgia Awareness Day, if you haven’t read my story you can do so here.  As my freebie said yesterday, so many people suffer in silence.  Many people don’t understand the struggle we go through daily.  As I was looking for quotes, I found this thing about spoons, I’d never heard “The Spoon Theory” before.  It was written by Christine Miserandino and so true!  This applies to so many invisible diseases.  Please take the time to read her theory here.

You may ask, what is an invisible disease?  It is any disease that you walk by them and you can’t see anything physically wrong with them.  Many of my friends had NO idea I was sick, FOR YEARS!  I hid it, why?  Because I didn’t want pity, I still don’t want pity.  I choose strength, joy, peace, and hope.  So when you see me, please don’t treat me like I’m broken. I may joke about it, but I’m not… I’m just stronger because of it.  I stood up one day and said I’m going to fight this beast head on.  Many people with Fibromyalgia can’t do that, please remember that.

Fibromyalgia doesn’t just affect one area of the body, but all of it… the side effects are horrible.  You’re on medications that make some things worse and other things better all at the same time.  Some days when all you want is a hug, that hug is going to cause you more pain than you can handle.  So they may cry when you hug them, but they may really need that hug!  It seems like an empty lonely world, because no one is inside it with you.  Cancer patients have visible signs, you may have surgery and it’s over… but Fibromyalgia is a life sentence.

You hold your spoons and decide how to use them! That’s how we live.  

To all those out there with Fibromyalgia, you’re not alone, you are loved, you can do this!  Find a doctor that will advocate with you and for you, keep going until you find one.  Build a network of support.  Live life, don’t hole up… enjoy the sun and flowers!

If you’re interested in finding out more and want a better understanding, this book is great  Fibromyalgia: A Guide to Understanding the Journey.